Open Medicine Foundation®
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ME/CFS and related chronic complex diseases

CNN: He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son

Medium: Meeting Whitney

By Jen Brea I’ve spent a lot of time imagining Whitney Dafoe. I’ve looked at as much of his photography and as many photographs of him as I could. I read everything written about him in the public domain. I’ve asked his parents, Stanford geneticist Ron Davis and child psychologist Janet Dafoe, and sister, Ashley...

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Ron Davis Message of Hope

Ronald W. Davis, PhD, Director of OMF’s Scientific Advisory Board, was invited to bring greeting to our friends in Norway participating in MillionsMissing Stavanger. Dr. Davis provided a brief research update that truly expresses his optimism. Watch this video message here. Your donations are helping to advance research and lead our team to find answers. #MayMomentum Transcript Ron...

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“Keeping the Hope” Song Release

A NEW SONG INSPIRED BY THE HOPE & HEART UNITE FOR ME/CFS POETRY & ART SLAM Laurie Glass’s poem, “Even Though,” selected from the 2019 Hope and Heart Unite for ME/CFS Poetry & Art Slam, was interpreted by singer/songwriters Maxwell Elefant and 95North. OMF and Lev Leytzan are thrilled with the melody these young composers...

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Fereshteh Jahanbani’s #MayMomentum Story: The Journey of an ME/CFS Researcher

In August of 2012, I began a remarkable journey, one from which I learned more than I ever could have imagined possible. It was just two months after I joined Mike Snyder’s team, the chair of Genetics and the Director of the Center of Genomics and Personalized Medicine at Stanford University. I met with so...

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Poetry & Art Slam Builds Awareness of ME/CFS

Open Medicine Foundation Community Inspires Hope May 21, 2019 (Los Angeles, CA) – In 2012, two forces changed lives. Laurie Glass, of Wisconsin, became chronically ill and housebound from myalgic encephalomyelitis/chronic fatigue syndrome (often referred to as ME/CFS). Laurie had been an active and busy person whose illness now confines her to the couch much...

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CNN: He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son

By Ryan Prior. Photographs by Rachel Bujalski for CNN. (CNN)Multiple times a day, every day, Ron Davis sits with his head bowed, waiting outside his son’s bedroom for a subtle signal that it’s all right to come in. He opens the door to the space where Whitney has spent most of the last decade. Whitney...

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