Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

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Your Powerful Stories:

Open Medicine Foundation asked our community to share photos and short bios that capture the reality of life with this complex and devastating disease. Persons with severe ME/CFS are often so ill that they are bedbound for 24 hours a day, confined to one room for years on end.

A Cure Is Out There

People with Chronic Complex Diseases deserve the right to live full, productive lives.

Scientific
Advisory Board
Scientific
Advisory Board
Scientific
Advisory Board
An Alliance of
Brilliant Scientific Minds

19 World-renowned scientists

2 Nobel Laureates

6 National Academy of Sciences Members

World-Class Research

6 OMF established ME / CFS Collaborative Research Centers

Scientific
Advisory Board
OMF Awarded Score of 100
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OMF’s score of 100 serves as an indicator of trust, demonstrating our longstanding commitment to ensuring accountability, transparency, and measures of financial health, including stability, efficiency and sustainability.

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OMF ACCELERATES RESEARCH ACROSS THE GLOBE

Since our inception in 2012, Open Medicine Foundation (OMF) has raised over $30 million to fund open and collaborative research and improve health care for millions suffering with chronic, complex diseases such as Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Long COVID, Post-Treatment Lyme Disease, and Fibromyalgia.  We have facilitated and funded the establishment of six research centers across the globe dedicated to diagnosing, treating, and ultimately preventing these related chronic, complex diseases.

Open Medicine Foundation is a US based global nonprofit, with an affiliate organization in Canada (OMF Canada) and a foreign branch in Australia (OMF Australia Ltd). Our 19 member Scientific Advisory Board is world renowned and includes two Nobel laureates and six National Academy of Sciences members. 

OMF Funded Collaborative Research Centers

at Stanford

Ronald W. Davis, PhD
Director

Innovative, collaborative, multi-disciplinary research

Ronald G. Tompkins, MD, ScD
Director

Clinical and scientific mechanistic studies towards discovering new treatments

at Uppsala, Sweden

Jonas Bergquist, MD, PhD
Director

Research for biomarkers in body and brain

Chris Armstrong, PhD
Director

Precision research program

Wenzhong Xiao, PhD
Director

From data to disease mechanism and treatments

 

Long Covid TO ME/CFS RESEARCH PLAN

The current COVID-19 pandemic offers an unprecedented opportunity to understand how a viral infection may convert to ME/CFS in some patients.

The six ME/CFS Collaborative Research Centers have begun a unique,  extensive, in-depth longitudinal molecular study following COVID-19 patients. Their shared goal is to determine the pathways involved in maintaining long-term symptoms in some patients,  possibly converting to ME/CFS. They seek to learn about these pathways so as to develop biomarkers, novel drug targets,  new treatment, and prevention strategies.

OMF Scientific Advisory Board

19 world-renowned scientists

2 Nobel laureates

6 National Academy
of Sciences members

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Across the Globe!

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"Our donors want to stop millions from suffering and have come to expect research with impeccable credibility. The time is now to attract the kind of serious investment that will speed up our search for a cure and end these debilitating diseases."

 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo