Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

Analyzing Patient Data Study (APS)

We are launching this new research study to perform a retrospective analysis of clinical laboratory data from hundreds of ME/CFS patients. This study will gather and analyze the clinical laboratory tests and results ordered by ME/CFS specialists. We are hopeful that analyzing a large number of clinical records using robust statistical methods may reveal new insights.

Drs. David Kaufman and Bela Chheda (Center for Complex Diseases, CA) and Dr. Susan Levine (ME/CFS Clinician & Researcher, NY) will lead the first phase of this study using de-identified results from their patients. Later, we hope to bring on additional clinicians. Eventually, we plan to share the results with the whole ME/CFS medical and research communities.

We are very grateful to our newest partners who has stepped in to lead the data analysis pro-bono. We are grateful to Hany Zayed, PhD, Head of Data Sciences Solutions, Rigel Pharmaceuticals and OMF Foundation Board Member who will lead this project.

 

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