We are launching this new research study to perform a retrospective analysis of clinical laboratory data from hundreds of ME/CFS patients. This study will gather and analyze the clinical laboratory tests and results ordered by ME/CFS specialists. We are hopeful that analyzing a large number of clinical records using robust statistical methods may reveal new insights.
Drs. David Kaufman and Bela Chheda (Center for Complex Diseases, CA) and Dr. Susan Levine (ME/CFS Clinician & Researcher, NY) will lead the first phase of this study using de-identified results from their patients. Later, we hope to bring on additional clinicians. Eventually, we plan to share the results with the whole ME/CFS medical and research communities.
We are very grateful to our newest partner, Statisticians without Borders, who has stepped in to lead the data analysis pro-bono. We are grateful to Hany Zayed, PhD, Head of Data Sciences Solutions, Rigel Pharmaceuticals and Statisticians Without Borders volunteer who will lead this project.
Update: The APS project now has nine clinicians sharing patient data. (March 2018)