Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

Thank you for bringing hope to us all!

I have some questions for Prof. Fluge regarding the Rituximab research that was published earlier this year.

I had Lymphoma and after the treatment (which included Rituximab and Cyclophosphamide) I went into a nearly complete remission of CFS and POTS for a couple of years.
For the past 4 years I have been getting again Rituximab and it helps me tremendously.

1. Recent studies shows most of POTS patients have adrenergic and muscarinic receptors autoantibodies.
Have you checked in any of your Rituximab studies whether people with CFS & POTS had better response to Rituximab than people with CFS without POTS?
Have you monitored the effect of the Rituximab on the POTS measures?
In my case it can serve as an objective marker for the Rituximab effect.

2. Are there any plans to continue researching Rituximab with CFS?
The dosage that was used in this study is way too low for me. Have you considered higher dosage?

Thanks!
Adi

(If my experience with Rituximab might contribute to the research I would be glad to help adi@lightintheshadows.net )

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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