Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

Feeling ME/CFS

By Anonymous

I hurt so badly I need hope …
The pain is shocking my brain like I the metallic cap of an electric chair
I scream loudly then silently as my voice echoes like the wind in a deserted house
Will you listen, really listen?

I hurt so badly I need hope …
The pain is freezing my muscles like I am stuck inside an arctic iceberg
I count with the ticking clock waiting for the melting that slowly comes
Will you give me warmth? Really give me warmth?

I hurt so badly I need hope …
My energy drains like I am a tree falling in the forest
I wonder if this is the end as I fight slowly than quickly yield to ground
Will you lift me up? Really lift me up?

I hurt so badly I need hope …
My surroundings swirl around me like I am a spinning top
I look for stability like a seasick sailor dancing on deck
Will you throw me a lifeline? Really throw me a lifeline?

Gone are the hopes of a career listening to others …

Gone are the hopes of providing warmth to the homeless …

Gone are the hopes of hiking deep into the wilderness …

Gone are the hopes of catching the sea spray while sailing …

Here are the days of listening to pink noise …

Here are the days of counting pills while laying on warm jade stones …

Here are the days of laying on heated jade stones …

Here are the days of watching wildlife from a zero gravity chair …

Here are the days of sea salt baths and chi machines …

It is You who Unites my Heart with Hope!

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