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Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

A Song for ME

By Andy Rees

Where is the one who knew no boundaries?
Where are the days spent running free?
Where now the stamina that’s failing to spring afresh inside of me?
Down in the west, those days have all gone.
Out like the tide with little trace.
Sleeping for now under a blanket – yet still they fight to show their face.

Not to be beaten by the hurting.
Not to be crushed by loss, or grief.
Not by the disillusionment and anger at those with disbelief.
Faithful and strong, hope keeps returning.
Never be broken, heart of mine!
Even if all is lost, and hope itself – still I choose not to resign.

There is much more to life than doing.
There still are other ways to be.
There are new battles worth the winning, before they put an end to me.
Do not be scared by seeming mountains.
Laugh at the fates, that show no care.
Remain yourself, in smaller portions – you can still reach that top-most stair!

If somehow you can be contented.
If you can learn to take small strides.
If you can pace yourself and not be caught up in life’s remorseless tides.
You will still have the strength to be you.
Some of the time your star can shine.
You will have gained so much by learning just what to do with precious time.

How many people know their true friends?
How many get to live two lives?
How many know they have the inner strength to endure all, and to thrive?
Confidence needn’t be diminished.
Wisdom and patience never die.
Humour, and love, and understanding, are still the standards we live by.

 

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