Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

A Song for ME

By Andy Rees

Where is the one who knew no boundaries?
Where are the days spent running free?
Where now the stamina that’s failing to spring afresh inside of me?
Down in the west, those days have all gone.
Out like the tide with little trace.
Sleeping for now under a blanket – yet still they fight to show their face.

Not to be beaten by the hurting.
Not to be crushed by loss, or grief.
Not by the disillusionment and anger at those with disbelief.
Faithful and strong, hope keeps returning.
Never be broken, heart of mine!
Even if all is lost, and hope itself – still I choose not to resign.

There is much more to life than doing.
There still are other ways to be.
There are new battles worth the winning, before they put an end to me.
Do not be scared by seeming mountains.
Laugh at the fates, that show no care.
Remain yourself, in smaller portions – you can still reach that top-most stair!

If somehow you can be contented.
If you can learn to take small strides.
If you can pace yourself and not be caught up in life’s remorseless tides.
You will still have the strength to be you.
Some of the time your star can shine.
You will have gained so much by learning just what to do with precious time.

How many people know their true friends?
How many get to live two lives?
How many know they have the inner strength to endure all, and to thrive?
Confidence needn’t be diminished.
Wisdom and patience never die.
Humour, and love, and understanding, are still the standards we live by.

 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.

How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669