OMF Newsletter – July, 2016

ME / CFS Severely Ill Big Data Study Update: Sample Collection Completed OMF is excited to announce that sample collection has been completed for the ME / CFS Severely Ill Big Data Study. The completion of sample collection means we now have the most multifaceted and downreaching data ever gathered to analyze and test in our search for a cure….

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Suggestions to NIH on Needed ME / CFS Research Strategies – by Ronald W. Davis, PhD

We are grateful for the opportunity to provide input to the Trans-National Institutes of Health (NIH) ME / CFS Working Group as they develop strategies to guide NIH’s research efforts and priority setting for research on ME / CFS. Our mission at the Stanford Chronic Fatigue Syndrome Research Center is to discover causes, a molecular diagnosis, and treatment options…

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Metabolomic and Chronic Fatigue Syndrome – by Robert Naviaux, MD

Testing an Exciting New Technology for Diagnosis and Management of ME / CFS and Other Illnesses We are excited to work with the Open Medicine Foundation (OMF) to help blaze a new trail in ME / CFS research. Dr. Robert Naviaux and his team at the University of California, San Diego recently completed a metabolomics study of over 80…

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ME / CFS in Children – by David S. Bell, MD

Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a chronic illness with a long and complex history. Estimates of its frequency range from 0.1% to 2% of the population in the United States1. Severity of the illness can range from trivial, where it is impossible to make the diagnosis to fatal, but this latter is, fortunately,…

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Key Features of Possibly the Most Underserved and Underdiagnosed Disease: Do You Have It?

By Linda Tannenbaum A February Institute of Medicine report said up to 91 percent of people with chronic fatigue syndrome have not been diagnosed. These people are not receiving appropriate treatments or healthcare advice. If you feel tired often, how would you know if you have this disease? ME / CFS, myalgic encephalomyelitis, also known as “chronic fatigue syndrome”…

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