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ME/CFS and related chronic complex diseases

News Blog

Medium: Meeting Whitney

By Jen Brea I’ve spent a lot of time imagining Whitney Dafoe. I’ve looked at as much of his photography and as many photographs of him as I could. I read everything written about him in the public domain. I’ve asked his parents, Stanford geneticist Ron Davis and child psychologist Janet Dafoe, and sister, Ashley…

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Ron Davis Message of Hope

Ronald W. Davis, PhD, Director of OMF’s Scientific Advisory Board, was invited to bring greeting to our friends in Norway participating in MillionsMissing Stavanger. Dr. Davis provided a brief research update that truly expresses his optimism. Watch this video message here. Your donations are helping to advance research and lead our team to find answers. #MayMomentum Transcript Ron…

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“Keeping the Hope” Song Release

A NEW SONG INSPIRED BY THE HOPE & HEART UNITE FOR ME/CFS POETRY & ART SLAM Laurie Glass’s poem, “Even Though,” selected from the 2019 Hope and Heart Unite for ME/CFS Poetry & Art Slam, was interpreted by singer/songwriters Maxwell Elefant and 95North. OMF and Lev Leytzan are thrilled with the melody these young composers…

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Fereshteh Jahanbani’s #MayMomentum Story: The Journey of an ME/CFS Researcher

In August of 2012, I began a remarkable journey, one from which I learned more than I ever could have imagined possible. It was just two months after I joined Mike Snyder’s team, the chair of Genetics and the Director of the Center of Genomics and Personalized Medicine at Stanford University. I met with so…

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Poetry & Art Slam Builds Awareness of ME/CFS

Open Medicine Foundation Community Inspires Hope May 21, 2019 (Los Angeles, CA) – In 2012, two forces changed lives. Laurie Glass, of Wisconsin, became chronically ill and housebound from myalgic encephalomyelitis/chronic fatigue syndrome (often referred to as ME/CFS). Laurie had been an active and busy person whose illness now confines her to the couch much…

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CNN: He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son

By Ryan Prior. Photographs by Rachel Bujalski for CNN. (CNN)Multiple times a day, every day, Ron Davis sits with his head bowed, waiting outside his son’s bedroom for a subtle signal that it’s all right to come in. He opens the door to the space where Whitney has spent most of the last decade. Whitney…

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What is ME/CFS: A video montage of patients around the world

The photos we received for Share in Times Square tell the story of how ME/CFS affects patients and their families. Today, these images are in the spotlight as a part of International Awareness Day and May Momentum. Hundreds of thousands of people will walk through Times Square in New York City and see the images…

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Sharing “Even Though” in Poetry Slam

Hope & Heart Unite for ME/CFS presents the 2019 selected poem, “Even Though” by Laurie Glass, and selections of the beautiful artwork that was submitted, in a video. The OMF community’s response to OMF and Lev Leytzan’s Hope and Heart Unite for ME/CFS Poetry and Art Slam was incredible! People in 17 countries submitted more than 130 entries and…

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Health Rising: Threading the Needle: Nanoneedle Scores Big in First ME/CFS Test

By Cort Johnson It’s not pretty! The print is abysmally small, the margins are tiny, long stretches of text are common (it abhors paragraphs), the images are jammed together, and the formatting is designed to make you work and is decades out of date, but the fact is that when you’re one of the top…

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  New Resources and Videos To help the broader community better understand ME/CFS as we currently understand it, we have recently updated our webpage, What is ME/CFS. What is ME/CFS now includes supporting pages on symptoms and a comparison of the different ME/CFS diagnostic criteria. These resources are meant to be a valuable tool for you that can be shared…

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