News Blog

OMF grants $1.2 million to Ramp Up Collaborative Research Center at Stanford University

Open Medicine Foundation is funding a Collaborative Research Center! The ME/CFS Collaborative Research Center at Stanford will be led by Dr. Ron Davis, Professor of Biochemistry and Genetics at Stanford University, and Director of our Scientific Advisory Board. Dr. Davis has assembled a truly world-class team of researchers, many of whom have never before focused…

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BU News Service: A Problem Coffee Cannot Fix; Boston Community Comes Together for ME/CFS

by Sarah Wells “Imagine you had the worst flu ever, but it never went away,” said Linda Tannenbaum, a clinical laboratory scientist, to a crowd gathered at Newton-Wellesley hospital earlier this month for a research update. She was describing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, more commonly referred to as just “Chronic Fatigue Syndrome.” Despite its mild-sounding name, Chronic…

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Treating Autism and ME/CFS: Could One Drug Help Both? 

by Cort Johnson Autism is one of the most difficult conditions to treat. A neurodevelopmental disorder that typically strikes before the age of two, about a dozen different areas of the brain are affected. Autism is characterized by social withdrawal, problems with both verbal and non-verbal communications and repetitive behaviors.  Autistic infants tend to smile…

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An Invisible Storm: Chronic Fatigue Syndrome

By Geetanjali Arunkumar India Currents, October 2017 edition Patient Geetanjali Arunkumar opens up and shares her personal story of two decades of ME/CFS to raise awareness and shine a light on patients around the world.

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ME/CFS in School Age Children – Tools to Help Them Succeed

Back to school time brings many challenges to parents’ of children with ME/CFS. We know that when a child has ME/CFS their lives are very different from their siblings and friends. Under the leadership of Mary Dimmock, OMF’s Education Committee has been working to create tools to help increase your child’s success in school. Dr. Faith Newton of…

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Sun Current: Chronic Fatigue Syndrome An Up-and-Down Battle for Edina High Alum

Author Andrew Wig Some parents of 20-somethings yearn for the day when their children finally leave the nest. Lianne Beyerl just yearns for a cure for a mysterious condition that leaves its victims homebound and exhausted. Beyerl’s search for answers began six years ago when her son, Jeff Beyerl, was a senior at Edina High…

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The first Community Symposium on the Molecular Basis of ME/CFS

[View the story “The first Community Symposium on the Molecular Basis of ME/CFS” on Storify]

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Molecular Underpinnings of ME/CFS Explored at the Open Medicine Foundation Symposium

By Cort Johnson “This is not a disease that can be solved by one person. It needs a community, and lots of expertise. I will work with anybody to do this.” Ron Davis The Working Group was impressive. Davis had Bob Naviaux to his left and Maureen Hanson next to him and Nobel Prize winner Mario…

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Deep Dive Into The Science On ME

By Adrianne Tillman Leading scientists presented their research on ME/CFS at the day-long Community Symposium on the Molecular Basis of ME/CFS* at Stanford on Aug. 12. The researchers spoke at length about the complicated biological processes involved, their study results and the limitations of their conclusions presented thus far. The amount of science on ME/CFS presented was…

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At symposium, researchers and patients examine molecular basis of Chronic Fatigue Syndrome

by Raeka Aiyar, PhD Ron Davis, PhD, calls Chronic Fatigue Syndrome (also known as Myalgic Encephalomyelitis, or ME/CFS) the “last major disease about which we know almost nothing.” That’s because at least a million Americans are debilitated by ME/CFS, and yet no clear cause is known, no treatments are approved; funding, understanding, and awareness are…

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