October is Dysautonomia Awareness Month and today, October 25th, we recognize POTS Awareness Day. Understanding Dysautonomia and POTS Dysautonomia is an umbrella term for a group of conditions that result from dysfunction of the autonomic nervous system (ANS)—the part of
October 9 is DAF Day—a national day dedicated to the power of Donor-Advised Funds (DAFs) to make a difference. This year, you can multiply your impact by directing a grant from your DAF to Open Medicine Foundation (OMF). To learn
What is Blinding? From the Desk of Dr. Danielle Meadows Vice President of Research Programs & Operations This month, I want to continue drilling down on some of the considerations that go into study design—the first stage of the research
OMF’s Collaborative Center at Montreal, in collaboration with our Collaborative Center at Uppsala and the Computational Research Center for Complex Diseases, has released a new paper: Haptoglobin phenotypes and structural variants associate with post-exertional malaise and cognitive dysfunction in myalgic
OMF’s Collaborative Center at Montreal, in collaboration with our Melbourne ME/CFS Collaboration, has released a new paper: Circulating Levels of SMPDL3B Define Metabolic Endophenotypes and Subclinical Kidney Alterations in Myalgic Encephalomyelitis. From the Desk of Dr. Alain Moreau, Director of
What is Proteomics? From the Desk of Dr. Danielle MeadowsVice President of Research Programs & Operations Back in April, I elaborated a bit on what metabolomics is and how it’s used in ME/CFS research, as an important component of the
In August, OMF researchers from our collaborative centers at Stanford University and Montreal published a couple of papers investigating red blood cell movement and correlating a plasma marker to symptom profiles. I want to, of course, share these two publications
From the Desk of Dr. Danielle Meadows Vice President of Research Programs & Operations Back in December of 2024, we announced a new large-scale biomarker project for ME/CFS, which we’re calling BioQuest. I am thrilled to be able to share
As a mother, there is no greater calling than to care for your child—and when my daughter Amy fell ill with ME/CFS nearly eight years ago, I knew I would do whatever it took to support her. Watching her go
In 2016, Open Medicine Foundation (OMF) hosted the first of four in-person ME/CFS Research and Community Symposiums at Stanford University, each drawing strong attendance. During the COVID-19 pandemic, the Research Symposium transitioned to a virtual format, expanding access for researchers
Types of Biosamples From the Desk of Dr. Danielle Meadows,Vice President of Research Programs & Operations Last month I talked more in depth about ethics review as a critical part of the first stage of the research process when conducting
Each year on August 8, Severe ME/CFS Day, we pause to recognize the immense challenges faced by those living with the most debilitating form of ME/CFS. It’s a day to acknowledge the suffering, honor resilience, and remember the lives that
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