Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

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October 17 – November 28, 2017
Photo of Jack Cosgrove, Jill von Ebers, Chris Quinn and Linda Tannenbaum
Jack Cosgrove, Dilla Cosgrove, Jill von Ebers, Chris Quinn and Linda Tannenbaum
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What does your donation support?
Learn Here.

Thank you to all of the donors, matching gift donors, and supporters around the world who helped us surpass our 2017 goal!

You don’t have to be a world leader or a billionaire to give back. Giving Tuesday is about ordinary people coming together doing extraordinary things. OMF is joining this global action with TRIPLE GIVING TUESDAY to accelerate research to help millions suffering with ME / CFS and other related chronic, complex diseases.

We are thrilled to announce that we have increased our  Triple Giving Tuesday goal to $350,000. Several anonymous donors have joined Jack and Dilla Cosgrove and Family and pledged to match your donation. Our new matching donors are two parents and two patients.

We have very generous matching grant donors!  This means that your donations will be tripled and we hope to raise $350,000 or more!

Triple Giving Tuesday donations will contribute to Phase II of OMF’s End ME / CFS Project. Details will be shared shortly.

Please join our Triple Giving Tuesday campaign!

#TripleTuesdayOMF will run from October 17 – November 28, 2017. Donate any day of the week during this period to have your gift tripled.

Ideas to Get Involved

  • Donate directly to OMF and have your donation tripled.

    DONATE NOW

  • Create a personal fundraising page and invite your family and friends to donate NOW to TRIPLE their donation.
  • Organize a fundraiser and leverage the power of #TripleTuesdayOMF. Host a bake sale, invite friends to a coffee, organize a holiday boutique, have fun and help to raise awareness of and dollars for research. Plan something simple or reach for the sky. Our TEAM OMF resources can help you have a very successful event.
  • Share our OMF #GivingTuesday hashtags
    #TripleTuesdayOMF #GivingTuesdayOMF #EndMECFS

“10 years ago, in Baltimore, at my first ME / CFS conference, I struck a conversation with the person sitting next to me. She had a nice smile. Linda’s daughter was sick.  My wife was sick. We left the conference with no answers but we had found each other.

Today Linda is helping OMF drive research that will find the cause and cure for ME / CFS. My family supports my wife Tracey every day doing our best to help her live a meaningful life despite this thing that has us in its grip. For the next 6 weeks, my family is your family. Together we raise hope and will win back our loved ones lives.”

Chris Quinn and the Cosgrove Family, Triple Giving Tuesday matching gift donors.

#GivingTuesday is Global

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo