Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

Insieme la nostra comunità ha spiccato il volo nel 2018

A nome del nostro team OMF, incluso il nostro Consiglio di amministrazione e il Comitato Scientifico e con i pazienti in tutto il mondo, grazie per il vostro grande supporto che ha contribuito a rendere il 2018 un anno da record nella ricerca per la ME / CFS. Con oltre $ 9 milioni di dollari raccolti nel 2018, siamo in grado di accelerare i nostri sforzi per coinvolgere più ricercatori e medici verso la comprensione delle basi molecolari della ME / CFS, nella ricerca di trattamenti efficaci e nella creazione di tecnologie diagnostiche innovative. All’inizio del nuovo anno, ti preghiamo di accettare la nostra più sincera gratitudine. Lo scorso anno, in particolare, abbiamo ampliato il Centro di ricerca collaborativa finanziato dall’OMF ME / CFS presso la Stanford University e avviato le attività di ricerca collaborativa finanziate dall’OMF ME / CFS presso il Massachusetts General Hospital (MGH) e gli ospedali affiliati di Harvard. Abbiamo anche finanziato diversi altri progetti di ricerca importanti. Di seguito sono riportati i punti salienti dei risultati ottenuti nell’ultimo anno:
  • Linda Tannenbaum ha visitato l’Italia, l’Olanda e diverse città statunitensi per portare speranza attraverso il tour mondiale dell’OMF per la fine della ME / CFS.
  • Linda Tannenbaum, Ronald W. Davis, PhD, and Ronald Tompkins, MD, ScD, hanno tenuto cumulativamente oltre 20 presentazioni sulla ME / CFS negli USA e a livello internazionale.
Riassuunto della Ricerca del 2018 Definizione dell’immunologia molecolare, studio della patogenesi Sviluppo di tecnologie diagnostiche  Esplorazione dei dati Grazie di averci aiutato a raggiungere questo importante sviluppo nel 2018. Non vediamo l’ora di aumentare le nostre attività nel 2019 e di accelerare ulteriormente il nostro lavoro per trovare risposte. Clicca qui se vuoi saperne d più: OMF, i traguardi raggiunti.   Con Speranza per tutti,
Linda Tannenbaum Fondatrice & CEO/Presidente La OMF ringrazia Mattia P. per la traduzione
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo