Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

OMF Financia un Centro de Investigació Colaborativa en Harvard y Amplia el centro de datos

GRANDES NOTICIAS en este #OMFSciencialos miércoles: OMF crea un nuevo centro de Investigación Colaborativa en EM/SFC en Harvard y amplía el centro de datos de Standford

Estamos orgullosos de anunciar que ¡OMF ha financiado $1.8 millones para establecer un nuevo Centro de Investigación Colaborativa en EM/SFC en la Universidad de Medicina afiliada al Hospital de Harvard!

El nuevo Centro de Harvard estará dirigido por los miembros de la Junta Asesora científica de OMF Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, PhD, de la Universidad de Harvard y trabajará en sinergia con el Centro de Investigación Colaborativa en EM/SFC de Stanford dirigido por Ronald W. Davis, PhD, de la Universidad de Stanford, también financiado por OMF.

OMF también está financiando la ampliación del Centro de Datos de Stanford para el Estudio de enfermos Severos, para abarcar todos los datos tanto de Stanford como de Harvard sobre EM/SFC, así como datos de otras investigaciones que se están financiando.

«Este es un paso emocionante e importante en nuestro trabajo para lograr el fin de EM/SFC, que podremos alcanzar gracias a la dedicación y las donaciones de nuestros muchos colaboradores. Gracias a todos por ayudar a hacer esto posible y por ser nuestros socios en este esfuerzo urgente para poner fin a esta devastadora enfermedad.» – Linda Tannenbaum, CEO/Presidente

Puedes encontrar más detalles sobre el nuevo centro de Investigación Colaborativa en EM/SFC de Harvard en nuestra Web: http://bit.ly/2Lr6LI0

OMF agradece esta traducción a María Cuesta

 

 

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo