Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Wij zijn er trots op te kunnen aankondigen dat OMF de oprichting van een derde ME / CFS Collaborative Research Center financiert, aan de Universiteit van Uppsala in Zweden.

Jonas Bergquist, MD, PhD, in the Uppsala University lab.

Het nieuwe Uppsala Centrum zal geleid worden door Jonas Bergquist, MD, PhD, lid van OMF’s Wetenschappelijke Adviesraad  en zal synergetisch werken met het ME / CFS Collaborative Research Center in Stanford, geleid door Ronald W. Davis, PhD, en het ME / CFS Collaborative Research Center in het Massachusetts General Hospital en de Harvard Affiliated Hospitals, geleid door Ronald G. Tompkins, MD, ScD, en Wenzhong Xiao, PhD van Harvard University. Alle door OMF gesubsidieerde wetenschap blijft onder de algehele leiding staan van onze  wetenschappelijke adviesraad, geleid door Ron Davis.

Dit nieuwe Collaborative Center concentreert zich  op de gerichte moleculaire diagnose van ME / CFS met het doel op bewijs gebaseerde strategieën te ontwikkelen voor interventies. In Uppsala worden veelbetekenende inspanningen gericht op de analyse van ruggenmergvocht als een unieke bron van neurochemische biomarkers voor ME / CFS. Hoge-resolutie massaspectrometrie zal worden gebruikt voor extreem gevoelige opsporing van endogene biomoleculen. Deze unieke technologie zal, in combinatie met de ontwikkeling van klinisch relevante screening en gerichte methoden voor het verzamelen van monsters, voorheen onbereikbare inzichten opleveren in de  pathofysiologie van ME / CFS.

OMF bedankt Team Dutch Us voor de vertaling

 

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo