Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid


Dans mon rôle de fondateur et PDG/président, et en partenariat avec notre directeur du conseil scientifique consultatif, Ronald W. Davis, PhD, je suis ravi d’annoncer que Ronald Tompkins, MD, ScD a accepté le poste de médecin chef de l’Open Medicine Foundation.


Le rôle du médecin chef sera de faciliter la communication entre les centres de recherche concertée et les collaborateurs pour les projets financés par l’OMF et de piloter le plan stratégique global de l’OMF qui comprend les soins aux patients, l’accès au traitement, les nouvelles technologies et les diagnostics innovants.

Nous évoluons d’un objectif de recherche clinique de base pour inclure le soutien au diagnostic clinique et à l’identification du traitement. Il est devenu essentiel d’avoir un leadership clinique au sein de l’OMF pour travailler avec les cliniciens et la communauté des patients. Il existe depuis longtemps un besoin d’améliorer les soins cliniques des patients EM/SFC, et le médecin chef travaillera également avec les patients et les cliniciens pour cette mission.

Vous connaissez peut-être déjà le Dr Tompkins comme codirecteur de la Collaboration sur l’EM/SFC soutenue par l’OMF dans les hôpitaux affiliés à Harvard, comme professeur de chirurgie Sumner M. Redstone à la Harvard Medical School et comme directeur fondateur du Center for Surgery, Innovation & Bioengineering au Massachusetts General Hospital.

Dans les semaines à venir, nous partagerons plus de détails sur la vision du Dr Tompkins pour la recherche OMF et EM/SFC. Son leadership dans les grands projets de recherche multidisciplinaires et multi-institutionnels dynamisera les efforts de l’OMF pour stimuler la recherche EM/SFC à travers le monde.

Restez à l’écoute de cette nouvelle aventure passionnante!

Très cordialement,

Linda Tannenbaum


En savoir plus sur le Dr Tompkins

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.


In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.


The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers’ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.


About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of six prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.


Heather Ah San

Development and Communications Manager