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ME/CFS and related chronic complex diseases

Palo Alto Magazine Features ME/CFS and Whitney Dafoe

2018 #MillionsMissing Demonstration in San Francisco | Researchers (video)

Laurel Crosby, PhD, and her colleague Fereshteh Jahaniani, PhD, explain how dedicated they are to doing the research to find answers to ME/CFS at the Stanford Genome Technology Center. Crosby is the engineering research associate and Jahaniani is the leading research in the ME/CFS multi-omics study. The Stanford Genome Technology Center (SGTC) develops new technologies to...

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2018 #MillionsMissing Demonstration in San Francisco (video)

Ashley Haugen, Events & Marketing Director for the CFS Research Center at Stanford University and Whitney Dafoe’s sister, served as emcee at the #MillionsMissing 2018 demonstration in San Francisco. In this video, we have a clip of Dr. Janet Dafoe, Whitney’s mother. She gives a visual demonstration that shows the lack of parity in research...

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#MillionsMissing in San Francisco; But We Were There

The biggest and most expansive one-day public display from ME/CFS patients and their loved ones was on May 25; and we participated. MEAction, a recently organized group, gets credit for the idea and planning of this unprecedented show of the patients’ will. Called the “#MillionsMissing demonstration,” the posters and, more symbologically, empty shoes, brought attention...

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San Francisco TV News Covers Davis’ Family Struggle with Severe ME/CFS

It’s a compelling story that has brought lots of news media attention: A famous scientist, our own ME/CFS Scientific Advisory Board director Ronald W. Davis, PhD, trying to find scientific answers to save his son from a devastating disease, Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. A San Francisco television news station reported Whitney Dafoe’s story of being...

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BBC Interview Includes Davis’s Son & OMF Severely Ill-BIG DATA Study

More and more people are learning how severe ME/CFS can be and about the OMF research initiative that includes these very ill patients. Ronald W. Davis, PhD, is the ME/CFS Scientific Advisory Board director and father of Whitney Dafoe, who came down with ME/CFS as a young adult. Their situation was featured on BBC on October...

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Palo Alto Magazine Features ME/CFS and Whitney Dafoe

Right as we are raising funds for the ME/CFS Severely Ill-Big Data Study, Palo Alto Weekly featured many aspects of the disease and its impact on three patients. It was their cover story, with the first article appearing on page 20. One of those patients, Whitney Dafoe, is the son of our ME/CFS Scientific Advisory...

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