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ME/CFS and related chronic complex diseases

Palo Alto Magazine Features ME/CFS and Whitney Dafoe

Experts Gather in Montreal to Develop International Research Agenda on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Cision PR Newswire

MONTREAL, April 25, 2018 /PRNewswire/ – International experts will participate in the first-ever Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Canadian Collaborative Team Conference on May 3–5, 2018 at CHU Sainte-Justine.  The conference will bring together 250 researchers and healthcare professionals from various disciplines to develop an international research agenda for this debilitating disease, for which there is no...

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ProHealth: There’s an Angel Among Us – Linda Tannenbaum Is Offering Genuine Hope to ME/CFS Patients

Author: Karen Lee Richards ProHealth is proud to name Linda Tannenbaum, founder of the Open Medicine Foundation, as ProHealth’s 2017 ME/CFS Advocate of the Year. “Linda has displayed a constant, magnificent dedication and commitment to patients, and her results have been nothing less than astonishing,” said ProHealth founder, Rich Carson. “In just the last year, she...

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Severe ME left me in a world of pain and darkness. 26 years on, why is it still so poorly understood?

Author and patient Naomi Whittingham shares her story on openDemocracy to raise awareness of ME/CFS: I live in a world largely hidden from view. Most of my neighbours do not even know that I exist. I was last seen as a child walking home from school 26 years ago. In the decades since, I have rarely...

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Palo Alto Magazine Features ME/CFS and Whitney Dafoe

Right as we are raising funds for the ME/CFS Severely Ill-Big Data Study, Palo Alto Weekly featured many aspects of the disease and its impact on three patients. It was their cover story, with the first article appearing on page 20. One of those patients, Whitney Dafoe, is the son of our ME/CFS Scientific Advisory...

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