Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID .

Spende in Deutschland

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Durch Maecenata’s Transnational Giving (TG) Programm können Spender in Deutschland nun eine Spendenbescheinigung für ihre Beiträge an die Open Medicine Foundation erhalten. Die Maecenata Stiftung ist eine gemeinnützige Organisation mit Sitz in Berlin. Im Rahmen ihres TG-Programms sind Spender jetzt in der Lage steuerlich absetzbar für karitative Zwecke weltweit zu spenden, während sich Maecenate um den nötigen Papierkram kümmert.

OMF wurde von Maecenata als internationaler Partner anerkannt. Wenn du eine Spende an OMF richten möchtest, erhältst du eine reguläre Spendenbescheinigung. Es gibt keine Mindestbeträge.

Spenden können mit Maecenata’s Spendenformular getätigt werden:

https://web.maecenata.eu/spenden?fb_item_id_fix=20795

Oder direkt an dieses Konto gerichtet werden:

 

Währung: EURO

 

Kontoinhaber: Maecenata Stiftung

 

IBAN: DE89 1003 0500 1061 0007 01

 

BIC: LOEB DEBB XXX

 

Bankhaus Löbbecke

 

Verwendungszweck: “TG19001 Open Medicine Fd, [Postadresse des Spenders für Bescheinigung]”

 

(Falls du in US-Dollar anstatt in Euro spenden möchtest, bitte kontaktiere Maecenata zuvor.)

 

Ein kleiner Beitrag von maximal 5% wird von der Spende abgezogen und geht dem TG-Programm für seine administrative und analytische Arbeit zu. Es steht Spendern völlig frei, diesen Beitrag ihrem Spendenbetrag hinzuzufügen oder nicht.

Weitere Information findest du unter: www.spenden.maecenata.eu

Bitte setze dich mit Maecenata direkt per Telefon oder Email in Verbindung um weitere Fragen oder Details zu besprechen.

Maecenata Stiftung, Rungestraße 17, 10179 Berlin

Telefon +49 30 2838 7909 / Fax +49 30 2838 7910 / Email tg@maecenata.eu /

www.maecenata.eu

Du, oder jemand den du kennst, kann OMF helfen die Forschung im Bereich ME / CFS zu beschleunigen und nun auch eine steuerwirksame Zuwendungsbestätigung erhalten. Falls wir dir in irgendeiner Weise helfen können, bitte schreib uns.

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

 

Averting a second pandemic:

Open Medicine Foundation leads groundbreaking international study of

Long COVID’s conversion to ME/CFS

AGOURA HILLS, CALIF.  — Open Medicine Foundation (OMF) is leading a large-scale international collaborative study investigating the potential conversion of Post-Acute Sequelae SARS-CoV-2 infection — more commonly known as Long COVID or Post-COVID Syndrome —  to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic, life-altering disease with no known cause, diagnostic test or FDA approved treatments available.

Up to 2.5 million people in the U.S. alone suffer from ME/CFS; the COVID-19 pandemic could at least double that number. An estimated 35 percent of Americans who had COVID-19 have failed to fully recover several months after infection, prompting many to call it “a potential second pandemic.”

OMF recognized a familiar health crisis emerging, one with eerie similarities to ME/CFS. This crisis presented a unique opportunity to understand how a viral infection — in this case COVID-19 — may develop into ME/CFS in some patients. The goal is to find targeted treatments for ME/CFS patients and ultimately prevent its onset in people infected with SARS-CoV-2 or other infections.

The federal government is only now investing in Post-COVID research, with no focus on its connection to ME/CFS. OMF has already engaged researchers for the largest-scale study of its kind, solely supported by private donors who have contributed over one million dollars to date. When fully funded, the five million dollar, three-year study will be conducted across the globe at OMF funded Collaborative Research Centers, led by some of the world’s top researchers and ME/CFS experts.

BACKGROUND

In a significant percentage of patients, infections preceded their development of ME/CFS.  For example, according to the CDC about one in ten infected with Epstein-Barr virus, Ross River virus, or Coxiella burnetti develop symptoms that meet the criteria for ME/CFS.

THE STUDY

The ability to follow the development of ME/CFS from a known viral infection is unprecedented to date and crucial to researchers‘ understanding of the disease. The focus of this study is to find the biological differences between persons returning to good health after COVID-19 and persons who remained ill more than six months after infection and developed ME/CFS.  Understanding these alterations in key pathways can lead to groundbreaking discoveries including new biomarkers, drug targets, and prevention and treatment strategies.

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About Open Medicine Foundation

Established in 2012, Open Medicine Foundation leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and prevent ME/CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome, Fibromyalgia, and Post COVID. OMF adds urgency to the search for answers by driving transformational philanthropy into global research. We have raised over $28 Million from private donors and facilitated and funded the establishment of five prestigious ME/CFS Collaborative Research Centers around the world. To learn more, visit www.omf.ngo.

CONTACT:

Heather Ah San

Development and Communications Manager

1-650-242-8669

heather@omf.ngo