Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

Privacy Policy

Open Medicine Foundation (OMF) is committed to respecting the privacy and security of our constituents. We have developed this privacy policy to ensure your information is stored safely and securely whether you are an active donor or constituent receiving our news.

By using the OMF site, you consent to the collection and use of your personal information in accordance with this policy. The terms of this policy apply to all personal information collected by OMF on the website www.omf.ngo and other website which are providing support and services for our organization. Registering and/or donating on this website constitutes an opt-in to receive communication from OMF, unless you inform us otherwise by emailing us at OMF.

Information Collected

We collect: name, address, telephone number, email address, payment information for current transactions only, information you wish to share including tributes (in honor or memory of), email comments, demographic information such as age, gender, relationship to the diseases we are studying, information you provide when you submit an application for employment, internship, or volunteer opportunities, and information you choose to provide when you request information or contact us directly.

We collect personal information when you register for our news, donate, register for events, complete surveys, volunteer, contact us by e-mail or post content on our social media sites. The information we collect is used to provide you with information about our research and programs. We generally respond to requests via email, social media private message and on occasion through postal mail service, telephone or Skype.

How Information is Used

OMF uses your information to understand your needs and provide you with better service. Specifically, we use your information to help you complete a transaction, communicate back to you, and update you on OMF happenings.

Payment processing is done through a secure-third party vendor. Credit card numbers are used only for donation or payment processing and are not retained for other purposes. We do not store credit card numbers except for the last 4 digits.

We use the comments you offer to provide you with information requested, and we take each recommendation seriously as to how we might improve communications. We may use your personal information to contact and communicate with you.

No Sharing of Personal Information

OMF will not sell, rent, or lease your personal information to any other organization. We assure you that the identity of all our donors and constituents will be kept confidential. Use of personal information will be limited to the internal purposes of OMF and only to further the activities and purposes of OMF.

We will send information related to OMF, our programs, events, and general communications if you have opted-in to receive these communications. If you have opted-out of receiving communications, you will continue to receive transactional communications related to your personal donations or tributes only.

Social Media Marketing

We may participate in Facebook’s ‘Custom Audience’ program which enables us to display ads to our existing supporters and ‘look alike’ audiences when they visit Facebook. We provide your email address to Facebook, so they can determine whether you are a registered account holder with them. Our ads may then appear when you access Facebook. Your data is sent in an encrypted format that is deleted by Facebook if it does not match with a Facebook account. For more information, https://www.facebook.com/business/help/744354708981227

IP Address

We may also track Internet Protocol (IP) addresses. An IP address is a number that can identify an Internet Service Provider and country location. It cannot provide other personal information.  We use your IP address to help diagnose problems with our computer server, and to administer our Online Platforms. Your IP address is used to help identify you but does not contain Personal Information about you. We can use IP addresses as identifying the source and volume of traffic on our website, so we can allocate resources to servers/networks in different regions. We also use IP address security filters to prevent known blacklisted IP addresses from accessing the site.

Use of Cookies

A cookie is a small text file that is placed on your hard drive. Cookies contain information, including personal information, that may be used to tell us about your site visit and can later be read by a web server in the domain that issued the cookie to you. The information that cookies collect includes the date and time of your visit, the pages you look at on this site, the site you visited just before coming to this site, the name of your internet service provider, your registration information, session identification number and your navigational history and preferences. The information from a cookie identifies if a user has previously signed up for our newsletter or other marketing campaign, so you don’t receive popovers if you’ve already signed up or dismissed the notification.

Cookies offer you many conveniences. They allow us to identify registered users when they return to the site so that they can retrieve previous information and interact with the site more efficiently.

You may elect to refuse cookies completely, but most browsers automatically accept cookies unless the user turns them “off”.  Please refer to the ‘Help’ instructions in your browser to learn more about cookies and how to manage their use.

If you choose to decline cookies, you may not use some interactive features of our site and services that depend on cookies, but you will be able to perform basic navigation through the site.

In addition to cookies, we may use other technologies, including single-pixel gifs (also known as web beacons) on our websites, on Facebook, in e-mail messages or newsletters. These tiny electronic images assist us in determining how many users have visited certain pages or opened messages or newsletters. We do not use these images to collect personal information. OMF uses the AdWords of Google Analytics and the Google Analytics cookie.

Security of Your Personal Information

The security of your personal information is important to us. We follow generally accepted industry standards to help protect your personal information including without limitation:

  • limiting access to your personal information to those of our employees who require it to provide services to you;
  • requiring employees to sign confidentiality agreements to protect customer and other confidential information;
  • ensuring that third-party service providers maintain the confidentiality of your personal information and not to use it for any unauthorized purposes;
  • encrypting forms using secure socket layer (SSL) technology; and
  • storing your personal information in secure computer systems which protect it from unauthorized access or use.

No method of transmission over the Internet, or method of electronic storage, is 100% secure. Therefore, while we strive to protect your personal information, we cannot guarantee its absolute security. Moreover, we are not responsible for the security of information you transmit over networks we do not control, including the internet and wireless networks.

Copyright

All content on this site – such as text, logos, photographs, button icons, images, audio clips, and videos – is the sole and exclusive property of OMF and is protected by U.S. and international copyright laws. Open Medicine Foundation is a registered trademark. All materials shared with OMF – such as personal stories, poems, lyrics, comments, photographs, drawings, or any other work by donors and volunteers becomes the property of OMF and is subject to the same copyright laws. You may request that your name be withheld to protect your privacy.

Children

While we do not actively collect personal information from minors without parental consent, we appreciate that our supporters are all ages. When we become aware we are contacted by a minor, we will always ask for consent from a parent or guardian to collect information about children, before contacting children, and before using a child’s name or image

Links

We may link to websites who are corporate sponsors or third-party content providers, that have different privacy policies and practices from those disclosed here. We assume no responsibility for the policies or practices of such linked sites and encourage you to become acquainted with them prior to use.

How Long Will We Keep Your Information

We will maintain a record of your personal information in our systems for as long as is necessary for the relevant activity. If you ask to opt out of our communications, we may continue to maintain a record of your information to enable us to comply with your request not to be contacted by us. We will maintain a record of all donations indefinitely.

Removing Your Name from Our Mailing List – Opt Out

It is our desire to not send unwanted communications to our donors or constituents. Constituents may opt-out of communications at any time. Click here to opt-out.

You retain control of how we use your data and you have the right to ask us to stop using your personal information. In some circumstances, we may legally be required to retain your personal data for audit/legal purposes. You are welcome to ask us about this if you choose to opt out. You also have the right to request a copy of the information we have about you and in conjunction with this request, to have us transport this data to a recipient of your choice. If you wish to see or transport this information, please contact our Administrative Manager at debby@omf.ngo or call us at 650-242-8669.

Contacting Us

If you have comments or questions about our Privacy Policy, please send an email to our Administrative Manager at debby@omf.ngo or call us at 650-242-8669.

This privacy policy may change from time to time. If we make any significant changes to this policy, we will publicize these changes clearly on our website or contact all active donors and constituents with the information.

Privacy Policy Updated April 2018