Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

The ache

By Anonymous

The ache of missing out on laughter filled games at Christmas
And still waking up with a body full of pain
despite the one item on my wish list
I miss walking with a clear head and clean hair
And not stumbling over words
and mixing where with were or there with their
God fair is fair
I cannot stare at this screen another day and keep my hair
Remember when I fell ill the despair
The sky was grey but glared too brightly at me
My eyes wouldn’t let me look any higher than the bare brown trees
Too hot but cold, sweating, shaking
Sobbing quietly like the muffled bird song losing all control
My whole body craves just to feel normal
My faith began to crumble, like a sand castle in stormy weather
I was more alone than ever
I prayed and prayed towards the highest clouds but never got sent anything
Until a soft scratching at my soul showed me the many things that I’m blessed with
Two thousand days of suffering but my families love is endless
I hope one day soon someone will finally put an end to this

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