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ME/CFS and related chronic complex diseases

News

CNN – Millions suffer from an invisible disease: My ME/CFS story

Author: Ryan Prior Every morning, I shave, brush my teeth, and swallow a dozen pills. I look in the mirror and thank God I can even walk out the door. Since 2007, I’ve lived with an incurable disease known as chronic fatigue syndrome. Internationally, doctors call it myalgic encephalomyelitis, or ME/CFS. The tongue-twister means “painful...

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Meet Laurel Crosby, PhD, member of the SGTC Team

On this #OMFScienceWednesday we are pleased to introduce you to Laurel Crosby, PhD, who was the first member of the Stanford Genome Technology Center (SGTC) to join Ron in his quest to understand the molecular basis for ME/CFS. Laurel shared her story with OMF. “My name is Laurel Crosby, PhD, and I’m an Engineering Research...

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InsideSources – The Monster Disease Medical Schools Don’t Mention

Author: Llewellyn King   For 10 long years, I’ve been writing and broadcasting about Chronic Fatigue Syndrome, now called Myalgic Encephalomyelitis (ME). Like all chronic diseases, it’s brutally unfair to the afflicted. But ME also can claim to have been unfairly treated by doctors and medical researchers, the pharmaceutical giants, and the politicians who control...

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Thank you ProHealth

On this #OMFScienceWednesday we want to thank one of our Community Symposium sponsors ProHealth.com. ProHealth is a steadfast supporter of OMF’s mission and research. Thank you to founder Rich Carson for your friendship. If you plan to join us at the Second Annual Community Symposium on the Molecular Basis of ME/CFS on September 29 at Stanford University, register today to reserve...

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South China Morning Post: Why ME, or yuppie flu, is like Aids was once – misunderstood or dismissed as not real, and ignored by most doctors

Author: Anthea Rowan Twenty million people suffer from myalgic encephalomyelitis, yet there is still no test for it, nor any approved treatment. We talk to a mother whose daughter has the illness, and who has consulted dozens of doctors in search of help Until my friend Caroline introduced me to myalgic encephalomyelitis, or ME, I...

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Meet Julie Wilhelmy, ME/CFS Collaborative Research Center at Stanford Team Member

On this #OMFScienceWednesday we want to introduce you to one of the extremely talented, dedicated researchers whose work OMF funds thanks to your generous support. We invited ME/CFS Collaborative Research Center at Stanford team member Julie Wilhelmy to share her background and role at the Stanford Genome Technology Center (SGTC). Julie wrote: “As a recent graduate...

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Message from an OMF Volunteer

Ben Howell, one of our most dedicated volunteers, recently took the time to record a video message to share with the OMF community. Ben is OMF’s liaison/correspondent on the Phoenix Rising forum, and was also instrumental in setting up the bitcoin donation program that allowed us to receive a $5 million donation from the Pineapple...

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New Harvard ME/CFS Research Center Fulfills Crucial Need

On this #OMFScienceWednesday we share a detailed report from HealthRising by Cort Johnson on the new OMF-funded ME/CFS Collaborative Research Center at Harvard. In the article, Cort explores the focus on muscles, introduces the two leaders of the Center, OMF Scientific Advisory Board members Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, PhD, explores the...

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What We Need to Accelerate Research

Tuesday, July 17 is Ron Davis’ Birthday! Join us to help make his wishes come true! Help Ron bring more researchers into the ME/CFS Collaborative Research Center at Stanford by donating today and inviting your family, friends, and colleagues to join you in supporting this critical research. Donate now and include your personal message. From our Scientific Advisory Board Director:...

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HealthRising: Ron Davis (Finally) Gets His Big Grant!

This #OMFScienceWednesday we share the exciting news that Dr. Ron Davis and his team have received an NIH award for 5 years, $3.9 million total grant of which $2.5 million goes to research and the rest goes to Stanford University overhead. (NIH always pays universities their “overhead or indirect” costs on top of the grant...

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