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ME/CFS and related chronic complex diseases

News Blog

2018 #MillionsMissing Demonstration in San Francisco (video)

Ashley Haugen, Events & Marketing Director for the CFS Research Center at Stanford University and Whitney Dafoe’s sister, served as emcee at the #MillionsMissing 2018 demonstration in San Francisco. In this video, we have a clip of Dr. Janet Dafoe, Whitney’s mother. She gives a visual demonstration that shows the lack of parity in research...

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MarieClaire: The Important Reason Why People are Leaving Shoes Around Cities

Author: Je Banach If on May 12th, you find yourself out and about in Amsterdam, Boston, London, Chicago, Edinburgh, or one of approximately 95 other cities around the world, it is likely that you will encounter a plaza or other outdoor area populated with pairs of shoes.  At first glance you may assume that you...

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2018 #MillionsMissing May 12 Advocacy: Do the Whitney Plea (video)

Janet Dafoe has a suggestion for ME/CFS patients this May 12: Video yourself doing the Whitney Plea. In this video, she explains what it is. After creating the video, we ask you to send it to ME Action so they can be sent to government officials. Instructions from ME Action: At the #MillionsMissing protests on Saturday and...

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Dr. Ron Davis Interviewed by WBUR at MA Dept. of Public Health “Unrest” Screening | ME/CFS Research (Video)

Ronald W. Davis, PhD, a pre-eminent scientist at Stanford and our own scientific advisory board director, in this interview mentions 4 prospective biomarkers, tells of the OMF-funded research now being pursued, and tells of the biological abnormalities being seen in ME/CFS patients. He also gives some advice for healthcare providers. The interviewer is Deborah Becker...

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Experts Gather in Montreal to Develop International Research Agenda on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome – Cision PR Newswire

MONTREAL, April 25, 2018 /PRNewswire/ – International experts will participate in the first-ever Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Canadian Collaborative Team Conference on May 3–5, 2018 at CHU Sainte-Justine.  The conference will bring together 250 researchers and healthcare professionals from various disciplines to develop an international research agenda for this debilitating disease, for which there is no...

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A “Metabolic Trap” for Chronic Fatigue Syndrome (ME/CFS)? (HealthRising)

By Cort Johnson The Newcomer Phair came to this disease like many others have – he knew someone (a neighbor) who had it. When a piece on ME/CFS by Tracie White showed up in the Stanford Alumni magazine in 2016, he contacted Laurel Crosby in Ron Davis’s Stanford lab and has been volunteering ever since.  He noted...

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The Mystery of Chronic Fatigue Syndrome (Hadassah Magazine)

By Carol Saline February 2018 In one of the early scenes in her heartbreaking 2017 documentary, Unrest, Jennifer Brea records a video on her iPhone showing the supreme effort it takes to get from her bed to her bathroom. Unable to sit up, she painstakingly slithers off the sheets and onto the floor. She collapses briefly and then begins to...

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Much Can Be Done to Ease ‘Chronic Fatigue Syndrome’ Symptoms (Medscape Medical News)

By Miriam Tucker SALT LAKE CITY, UT — The illness commonly known as chronic fatigue syndrome is complex and currently incurable, but clinicians can still do a great deal to manage symptoms and improve patients’ quality of life, experts agree. In a 2-day meeting held March 2 and 3, 2018, specialists in the condition, now...

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ME/CFS Clinicians Summit: Advancing Collaboration & Improving Clinical Care

On March 2-3, 2018, the Bateman Horne Center hosted the Clinicians Summit, an exciting meeting of leading U.S. ME/CFS clinicians to share their experiences on diagnosis and treatment in order to improve ME/CFS clinical care and better target research. The goals of this meeting were ambitious and included the following: Summarize key diagnostic and treatment...

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Myalgic Encephalomyelitis: Unknown Cause. No Cure. New Hope. (ASBMBToday)

By Lily Williams Lizzie Mooney is 12 years old. She is tall for her age with long blonde hair. She likes to wear Chicago Bears pajama bottoms and a hoodie. She’s funny, making up games and teasing her siblings. Lizzie excels in reading and math. She spends time crafting and watches science shows with her...

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