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ME/CFS and related chronic complex diseases

News Blog

Linda Tannenbaum & Llewellyn King Interviewed on Joe Madison

OMF Founder and CEO/President Linda Tannenbaum and activist, reporter, and OMF friend Llewellyn King were interviewed on Joe Madison – “The Black Eagle” SiriusXM talk show on Urban View Channel 126! Watch it now: In the interview, Linda and Llewellyn discuss the devastating impact of ME/CFS and the urgent need for increased biomedical research, and the lack…

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An Exciting Week for Advancing ME/CFS Research

I’m pleased to share with the OMF community that the OMF sponsored Stanford ME/CFS Working Group and Third Annual Community Symposium on the Molecular Basis of ME/CFS once again is helping to advance urgently needed research on this disease. During the three days prior to the Community Symposium, 60 scientists from all over the world,…

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A resource for clinicians and patients. The U.S. ME/CFS Clinician Coalition, a group of U.S. ME/CFS experts, has authored a handout on the basics of diagnosis and management of ME/CFS. This handout is being made available on our website for the medical community to help them better understand how to recognize ME/CFS and how to…

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A message from Whitney on Severe ME Day

In recognition of #SevereMEDay, we would like to share this touching message of hope from Whitney (Ron Davis and Janet Dafoe’s son), which he conveyed to his mother with great effort. Whitney offers a reminder to each member of the patient community that they are not alone in this fight: “Last night, when Whitney was…

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New Hub of ME/CFS Research Opens at Harvard Plus the “Hidden Gem” and New Insights

New Hub of ME/CFS Research Opens at Harvard Plus the “Hidden Gem” and New Insights The skeptic in me reared its head when I heard the OMF was funding a new ME/CFS center at Harvard. Was this going to be a real “Center” – a real research hub – I asked myself suspiciously – or…

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The IDO Metabolic Trap

By Christopher Armstrong, PhD Dr. Robert Phair has recently published a paper detailing his “metabolic trap” hypothesis underlying ME/CFS, a theory that combines engineering and physiology put together by a man adept in both fields. Dr. Phair is co-founder and Chief Science Officer of Integrative Bioinformatics, Inc, a small company built around a unique software…

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Harvard Collaboration Research Presentations Now Available

Recordings of individual presentations from the OMF-funded Inaugural Harvard ME/CFS Collaboration Symposium “Finding Clarity” Community Day are now available. Please take the time to view the recordings here. Symposium presentations included a clinician panel featuring Dr. Amel Karaa, Dr. Anthony Komaroff, and Dr. Donna Felsenstein and individual presentations by Dr. Michael VanElzakker, Dr. Ron Davis, Dr….

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Celebrate with Ron and Janet

On July 12th, Ron Davis and Janet Dafoe will celebrate their 50th Wedding Anniversary. On July 17th, Dr. Ron Davis will celebrate his birthday. OMF is inviting you to join us in being part of a special card for these milestones. Donate in honor of Ron and Janet for their celebrations and show them how much our community appreciates their tireless work. All donors will be…

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Celebrated Author Karin Alvtegen Joins OMF Ambassadors

We welcome Karin Alvtegen, one of Scandinavia’s most widely read and appreciated authors, as our third OMF Ambassador. Karin is recognized for her psychological thrillers, which include Guilt, Missing, Betrayal, Shame, Sacrifice, and Shadow, and has established herself as a celebrated bestseller worldwide. Her books have been translated into more than 35 languages. Missing has been made into a praised…

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The ME/CFS Harvard Collaboration building momentum

by Christopher Armstrong, PhD, OMF Science Liaison When the  Harvard ME/CFS Collaborative at Harvard Affiliated Hospitals was initiated last year with funds from Open Medicine Foundation (OMF), it was considered a commitment to co-leaders, Ronald G. Tompkins, MD, ScD, and Wenzhong Xiao, Ph.D., to begin a research operation in one of the world’s most respected…

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