Open Medicine Foundation®
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ME/CFS and related chronic complex diseases

News Blog

OMF Makes Personal Fundraising Easy

Your personal story has power to further research. Do you or a loved one affected by ME/CFS have a birthday, anniversary, wedding or other celebration coming up? Why not create a fundraiser in their honor? Are you or someone you know doing a walk, running a marathon, triathlon, half marathon, 5K or relay? Why not…

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Dr. David Bell to Speak on ME/CFS on Dec. 6

If you can make it, we invite you to hear Dr. David Bell, a doctor who has a long history in caring for ME/CFS patients. He will give his perspective of the recent news about the disease and describe three disease entities at a December 6 event at the Tustin Public Library in Orange County,…

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Matching Donation Goal Met

Two very generous supporters offered  to triple-match donations during the push for #GivingTuesday with a maximum outlay of $45,000. Well, thanks to you, we already met this goal and then some! Therefore, the $15,000 we received will be matched with an additional $45,000! A whopping $60,000 already raised, and we still have one week to go before…

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Ron Davis and Other Scientists Take a Stand against Bad Science

Recent analysis and commentary from individuals not personally affected by ME/CFS have exposed the PACE Trial as having many flaws. In David Tuller’s three-part series, our ME/CFS Scientific Advisory Board director, Ronald W. Davis, PhD, is quoted. Now Prof. Davis and others have gone one step further and are asking that the medical journal’s editor arrange…

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Congratulations & Thanks to Michael Weeks

Michael Weeks, a product implementation specialist at Penn State Mutual Life in Philadelphia (according to his LinkedIn profile), won the company’s highest achievement award. He then donated the $10,000 to OMF research. This is a great opportunity! Do you know a “high achieving” relative who cares about ME/CFS patients? Suggesting they support the End ME/CFS Project…

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San Francisco TV News Covers Davis’ Family Struggle with Severe ME/CFS

It’s a compelling story that has brought lots of news media attention: A famous scientist, our own ME/CFS Scientific Advisory Board director Ronald W. Davis, PhD, trying to find scientific answers to save his son from a devastating disease, Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. A San Francisco television news station reported Whitney Dafoe’s story of being…

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More Details about the New NIH Effort on ME/CFS

We can trust Cort Johnson to get access to movers and shakers in the ME/CFS world and break down news into easy-to-understand words. In his most recent report, he also finds out more details about the NIH announcement of increasing ME/CFS research efforts.In the lengthy piece, Cort tells of our conversations with NIH in trying to bring…

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NIH Increases ME/CFS Research with New Initiative

In a press release released on October 29, the NIH announced they have a new program to advance research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. Under the leadership of the National Institute of Neurological Disorders and Strokes, we expect this new “research protocol at the NIH Clinical Center” will mean more research done by…

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In-Depth Report Reveals Numerous Flaws in CBT and GET Study

The results of the PACE Study were greatly anticipated. But according to an in-depth report, the expectations and hype do not match the actual results data. David Tuller, an accomplished national journalist, now Berkley University professor, worked for months to find solid basis for the study authors’ claims that cognitive behavior therapy and grade exercise therapy…

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BBC Interview Includes Davis’s Son & OMF Severely Ill-BIG DATA Study

More and more people are learning how severe ME/CFS can be and about the OMF research initiative that includes these very ill patients. Ronald W. Davis, PhD, is the ME/CFS Scientific Advisory Board director and father of Whitney Dafoe, who came down with ME/CFS as a young adult. Their situation was featured on BBC on October…

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