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ME/CFS and related chronic complex diseases

San Francisco TV News Covers Davis’ Family Struggle with Severe ME/CFS

HealthRising: The Metabolic Trap Shines During the Symposium on the Molecular Basis of ME/CFS at Stanford

by Cort Johnson A New Approach To Chronic Fatigue Syndrome If we ask Nature a question and ask it well, Nature answers. Most of the time the answer refutes our hypothesis. This time, Nature didn’t refute the hypothesis. Robert Phair Ron Davis mentioned one of chronic fatigue syndrome’s aces in the hole several times –...

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Fuel Shortage: Norwegian Study Expands on Energy Problem in Chronic Fatigue Syndrome (ME/CFS)

Fluge and Mella seem to be working at almost lightning speed. Besides managing their huge Rituximab study (and all the sub-studies within it) and the cyclophosphamide trial, they’re also carrying out large research studies. For years, of course, some researchers and doctors championed the idea that problems with mitochondrial energy production were at the heart...

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Severe ME left me in a world of pain and darkness. 26 years on, why is it still so poorly understood?

Author and patient Naomi Whittingham shares her story on openDemocracy to raise awareness of ME/CFS: I live in a world largely hidden from view. Most of my neighbours do not even know that I exist. I was last seen as a child walking home from school 26 years ago. In the decades since, I have rarely...

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Tannenbaum on ME/CFS Alert about Fundraising and our Primary Research Goal

A champion of ME/CFS patients, Llewellen King, interviews our executive director about fundraising and what will attract government research funding, pharmaceutical companies, and large foundations. King, who is reporter and commentator on national politics and host of his own television show, became interested in ME/CFS after his colleague was afflicted. His first report drew such...

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Working Together Leads to Documentary Release

You may know Ryan Prior, an ME/CFS patient in Atlanta who become sick while in school. You may know he wrote about his experiences in USA Today. You may know he and Nicole Castillo worked hard to create a documentary about the disease: “Forgotten Plague.” You may know that the documentary includes our ME/CFS Scientific...

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San Francisco TV News Covers Davis’ Family Struggle with Severe ME/CFS

It’s a compelling story that has brought lots of news media attention: A famous scientist, our own ME/CFS Scientific Advisory Board director Ronald W. Davis, PhD, trying to find scientific answers to save his son from a devastating disease, Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. A San Francisco television news station reported Whitney Dafoe’s story of being...

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