Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

Continuing The Worldwide Tour to Spread Hope Around the U.S.

The study of gene expression in ME/CFS by measuring RNA in patient samples

On this #OMFScienceWednesday, we look at why it is interesting to study gene expression in ME/CFS by measuring RNA in patient samples. Genes – made up of DNA – are expressed as RNA to accomplish their functions in the cell, often by being translated into proteins. The amount of RNA expressed from each gene is regulated...

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BU News Service: A Problem Coffee Cannot Fix; Boston Community Comes Together for ME/CFS

by Sarah Wells “Imagine you had the worst flu ever, but it never went away,” said Linda Tannenbaum, a clinical laboratory scientist, to a crowd gathered at Newton-Wellesley hospital earlier this month for a research update. She was describing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, more commonly referred to as just “Chronic Fatigue Syndrome.” Despite its mild-sounding name, Chronic...

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“Help us live – not just survive” by Britt M.

Britt and her daughter, Julia, know firsthand the “changes” in life caused by ME/CFS. Britt harnessed her feelings and created a fundraising campaign to support the End ME/CFS project. Britt bravely shared her personal story and challenges to encourage others to step up and get involved. “To suffer from ME/CFS, like me and my daughter,...

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Scope: Personalized Health Conference cultivates international, interdisciplinary collaborations

Author: Raeka Aiyar, PhD “Every one of us has a passion to improve human health,” said Lloyd Minor, MD, dean of Stanford’s medical school, as he welcomed participants to the Personalized Health Conference held here earlier this month. “And it’s important to remember that in the end, research is about the people. We must always find...

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OMF Joins UNREST to Host HOUSE PARTIES Around the World

With the broadcast of Unrest on the US PBS/Independent Lens coming January 8th, now is your opportunity to share the film with friends, colleagues, and family members that don’t know much about ME/CFS or want to know what else they can do! This is a great way to get more folks to inspired to support OMF’s research! Time for Unrest...

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Continuing The Worldwide Tour to Spread Hope Around the U.S.

Dear Friends, After my European Tour of Hope in May/June, I continued this fall in the USA and that has left me at the end of this year with wonderful long lasting impressions! The last months offered me many occasions to interact again with patients, parents, support groups and patient leaders, not only to inform them about...

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