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ME/CFS and related chronic complex diseases

Isle of Man Visit May 24-25: Overall impressions from Linda Tannenbaum

Isle of Man: Improved ME/CFS Care On The Horizon After Linda’s Visit!

Update provided by Isle of Man ME Support Group. On Monday, Celia Marshall Chair of the Isle of Man ME Support Group, said on Manx Radio that improved care for ME/CFS patients could soon be on the horizon. She says talks are on-going with the Department of Health and Social Care about what services could...

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May 30: Belfast – Northern Ireland (Day 7)

On Tuesday May 30th, my 7th day into the European Tour of Hope, I visited Belfast in Northern Ireland. Andy Hugh made it very easy for me and took me by the hand every step of the way from Newry to Belfast. Thank you Andy for taking care of me in such a warm way...

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May 28: Dublin, Republic of Ireland (Day 5)

On Sunday, May 28th Linda gave an inspiring presentation at a public meeting in Dublin at an airport hotel. The meeting was set up by Tom and Vera Kindlon of the Irish ME/CFS Association. Over 80 people attended: half of them were patients, and the other half were parents and caregivers. Linda had the honor...

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UC San Diego Health: Researchers Studying Century-Old Drug in Potential New Approach to Autism

Authors Scott LaFee and Heather Buschman, PhD Small, randomized clinical trial reported measurable, but transient, benefits after single dose of suramin, highlighting novel causative theory and need for more, larger and longer trials. In a small, randomized Phase I/II clinical trial (SAT1), researchers at University of California San Diego School of Medicine say a 100-year-old...

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May 26: Meeting with Tom Kindlon in Ireland

On Friday May 26th Linda arrived in Dublin (Republic of Ireland) and was picked up by someone voted “Best Taxi Driver” in Dublin. This great taxi driver took Linda to visit the brilliant and famous Tom Kindlon and his lovely, never-give-up mother, Vera. Linda was very honored to being able to visit Tom on this...

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Isle of Man Visit May 24-25: Overall impressions from Linda Tannenbaum

Dear Isle of Man friends, Dear Team OMF friends, I just finished a very heartwarming visit to the Isle of Man, a beautiful island 30 miles by 10 miles with views of the bay almost from everywhere. It is a small “paradise” with lovely people and I had a very warm welcome. The island has...

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