Open Medicine Foundation®
Leading research. Delivering hope.
ME/CFS and related chronic complex diseases

Power of 1: How a 9-Year-Old Raised ME/CFS Research Funds

OMF Launches the End ME/CFS Worldwide Tour: A Personal Note From OMF CEO Linda Tannenbaum

Dear Friends, Ten years ago our beautiful daughter became ill with sudden onset ME/CFS. That morning, she went to school perfectly fine. What happened during that day changed the course of our lives forever and started my husband Don and I on our journey to find a cure for this terrible disease. Over these past...

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SCOPE: Stanford researcher develops tools to understand Chronic Fatigue Syndrome

Author: Holly MacCormick Many scientists care deeply about their work. Yet for researcher Ron Davis, PhD, the drive to decode the mystery of Chronic Fatigue Syndrome is all-encompassing: Davis’ 33-year old son, Whitney Dafoe, has been bedridden with the disease for nearly four years. Since his son fell ill, Davis has worked to uncover the...

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Fisch for a Cure: a Toronto ME/CFS Music Event

A dynamic group of passionate friends are hosting Fisch for a Cure, a fundraiser to honor of patient and Team OMF hero Ryan Fisch in Toronto, Canada on Saturday, April 1. The event is being held at the Steam Whistle Brewery and will include a live band, dj, open bar, and tons of fun. If...

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NIH Director’s Blog: Moving Toward Answers in ME/CFS

Authors Dr. Walter Koroshetz and Dr. Francis Collins Imagine going to work or school every day, working out at the gym, spending time with family and friends—basically, living your life in a full and vigorous way. Then one day, you wake up, feeling sick. A bad cold maybe, or perhaps the flu. A few days...

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New York Times: Getting It Wrong on Chronic Fatigue Syndrome

By Julie Rehmeyer and David Tuller What are some of the treatment regimens that sufferers of Chronic Fatigue Syndrome should follow? Many major medical organizations cite two: psychotherapy and a steady increase in exercise. There’s just one problem. The main study that has been cited as proof that patients can recover with those treatments overstated...

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Power of 1: How a 9-Year-Old Raised ME/CFS Research Funds

Inspired by her sick mother, an adorable 9-year-old girl in the Netherlands started to fundraise for OMF. Together with her classmates in Room 5A at the Rainbow School, this Team OMF hero raised over $130. That wasn’t good enough for her so she created a new movement called “kiss ME goodbye.” #kissMEgoodbye is a social...

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