Open Medicine Foundation®
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ME/CFS and related chronic complex diseases

OMF Newsletter – September, 2016

Huffington Post: Millions Are Missing: Will The World Finally Notice?

This week, demonstrations occurred in 25 global cities world-wide to focus attention on a neglected, devastating disease — Myalgic Encephalomyelitis (ME), an illness that also goes by the misleading name Chronic Fatigue Syndrome (CFS). At this event, the most powerful demonstrators were those who could not attend — the bedridden and housebound patients. The protest,…

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We are Sisters and Brothers Who Dream of Healthy Days in the Sun

There are moments when other people’s influence on your life becomes so clear. Moments when the pain, the struggle and the dark nights fade away as someone with a word or an action make a difference. For my birthday some friends and also people I never have met sent me donations for The OMF End…

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This is My ME-story

The 28th of October 2009 I went to work entirely well and in good shape. My employer had encouraged all employees to accept a flu shot and I accepted to comply with my employer’s wishes. 10 minutes after the shot I started to feel cold and unwell. 2 hours later I had a full blown…

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I Always Traveled by Bike

I ALWAYS TRAVELED BY BIKE. Everywhere, in every season. I enjoyed concerts, being politically active, camping, dance, hiking, canoeing, traveling, gymnastics, my work, playing guitar, painting, cooking and just hanging out with my friends. I was the only kid in my whole public school of 500 that got the “Award of Excellence” for physical fitness….

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New York Magazine: The Implosion of a Breakthrough Study on Chronic Fatigue Syndrome

There’s very little that science knows definitively about Chronic Fatigue Syndrome, a disease characterized by often debilitating physical and mental exhaustion — researchers still haven’t been able to identify a cause, let alone a cure. But in 2011, a study published in The Lancet claimed that it had done exactly that: The data, the authors…

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OMF Newsletter – September, 2016

Metabolomics Study Results Take Center Stage The suspense is over, the results are in: Robert K. Naviaux, MD, an esteemed member of our Open Medicine Foundation Scientific Advisory Board, just published “Metabolomic Features of Chronic Fatigue Syndrome” by Naviaux RK, et al. in the prestigious journal, Proceedings of the National Academy of Sciences (PNAS). Dr. Ron Davis said: “This landmark ME/CFS…

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